5th Annual Kawasaki Disease Foundation Gala

It's that time of year again. The time where I bring out the horrific photo of my sick baby boy and beg for money and support... And yes, I am going to retell the story. And yes, I hopefully will make you cry... and donate some money... 

My baby boy was 9 months old.

Sweet, little Lucas had just celebrated his first Thanksgiving, was starting to pull himself to a standing position and was about to celebrate his first Christmas. One evening, we took him to Balboa Park, to what used to be called "Christmas on the Prado" to see the lights. He was all bundled up and tucked in tight to his stroller when our friend looked down at him and said "Wow, I never realize how red his cute little lips were!" I stared at him, wondering why we had never noticed this before.

Jason and I were only 9 months into this parenting thing. Maybe the baby was cold? Maybe he ate something he shouldn't have? Thoughts raced through our minds. The next day our sweet boy had his very first fever. We called the nurse line and doled out the proper dosage of infant Motrin and gave him a lukewarm bath. Our normally happy baby was crying and sleeping and visibly uncomfortable.

The next day the fever continued on. His lips grew redder and his eyes were a little bloodshot. Monday came with an early visit to our pediatrician. She made note that this looks "something like Kawasaki Disease" - but told us not to worry.. that was a very rare illness. She told me not to Google it and freak myself out. She put him on antibiotics and sent him in for a chest Xray to rule out pneumonia. 

This was before smartphones - with my day spent at doctors and caring for my sick, little baby, I actually didn't Google Kawasaki Disease...but when he was admitted to Rady Children's Hospital the next day, I wish I had.

Kawasaki Disease is the NUMBER ONE CAUSE OF ACQUIRED HEART DISEASE IN CHILDREN. And going on 9 years later, doctors and scientists STILL don't know exactly what causes it. 

This is where I tell you how LUCKY we were that we walked into Rady Children's Hospital and almost right into Dr. Jane Burns, one of the top KD doctors in the country. Why was that so lucky? Because at the time, many pediatricians weren't trained to recognize and treat KD, and far too many parents were losing their kids to this disease. Our doctors diagnosed the disease in time for a successful treatment.

I use the term "at the time" loosely as well. KD's NUMBER ONE challenge is that doctors still don't recognize it in time and most people still haven't heard about it. But thanks to the work that the Kawasaki Disease Foundation has been doing, people are starting to learn about it. Thanks to actress Sarah Chalke for her influence to have the disease featured on Grey's Anatomy and thanks to Gary Busey for his influence, people are beginning to know more about the signs, what to look for and what questions to ask their doctors. 

This year I sat with my little man, now 9 years later, as he once again had vials of blood drawn and hours of EKGs and tests. Once again I felt that tightening of my heart as the doctors reviewed the findings and examined him. Would they find something this year? Could heart damage appear at this point? 

Once again we were lucky.

9 years later the worst illness or injury the kid has had since is his (currently) fractured wrist. And while with all the new changes to our life, I wasn't able to help as much as I would have liked, I am once again reaching out to my friends and family to help support this foundation during it's annual fundraiser. 

Saturday, November 9th is the 5th Annual "To Save a Child's Heart" Kawasaki Disease Foundation Gala.

While the gala is actually sold out this year, I would love to be able to offer a sizeable contribution in Lucas' name.

Can you help? Anything from $5 up will help make a difference to kids and their little hearts world across the county.

This kid, thanks you. 

Please Help Support "Lucas' Heart", A Table at The Kawasaki Disease Foundation Gala

This month, we have much to be thankful for. While some people are using Facebook to post 30 different things they are thankful for this November, I am really thankful for two main things - the health of my children and the love and support of our friends and family.

November and December are hard for me since these two months mark anniversaries of times when I had to worry about the health of my babies. November brings memories of tiny Zoe, being born at 4lbs 15oz and then not gaining weight. December sends me in my downward spiral, recalling when Lucas was in the hospital with Kawasaki Disease. 

And this month, I'm thankful that BOTH of them are healthy, vibrant, smart, hilarious, sweet children. 

Over the past month I've talked a lot about Kawasaki Disease and the 4th Annual "To Save A Child's Heart" Gala. Many of you have offered to help in some form or another, and for you, I'm also thankful.

I know that our budgets are stretched thin this month. I know that you are being asked to donate to many things, but if you have any room, Jason and I would appreciate a little help in honor of Lucas' little heart. 

As I said before, we are lucky when it comes to our KD experience. We had an amazing pediatrician who recognized the symptoms, we walked into an amazing hospital and were practically met at the door by the number one KD doctor in the US. But unfortunately, our situation is not the norm. 

And that's what we are raising money for - the parents and the children who do not have the resources we did at their fingertips. 

I would love to have a table at the gala dedicated to Lucas, his little heart, and any future hearts that may one day be affected by KD. 

Will you help?

I'm hoping to raise $1500 - and any amount you can give is greatly appreciated. 

The Kawasaki Disease Foundation Gala - Can you help?

Just going to be upfront on this - I'm going to tell you a little story that may pull at your heart, then I'm going to ask you for a favor…

My baby boy was 9 months old.

Sweet, little Lucas had just celebrated his first Thanksgiving, was starting to pull himself to a standing position and was about to celebrate his first Christmas. One evening, Jason and I took him to Balboa Park, to what used to be called "Christmas on the Prado" to see the lights. He was all bundled up and tucked in tight to his stroller when our friend looked down at him and said "Wow, I never realize how red his cute little lips were!" Jason and I stared at each other, both of us wondering why we had never noticed either. 

We were only 9 months into this parenting thing. Maybe the baby was cold? Maybe he ate something he shouldn't have? Thoughts raced through our minds. The next day our sweet boy had his very first fever. We called the nurse line and doled out the proper dosage of infant Motrin and gave him a lukewarm bath. Our normally happy baby was crying and sleeping and visibly uncomfortable. The next day the fever continued on. His lips grew redder and his eyes were a little bloodshot. Monday came with an early visit to our pediatrician. She made note that this looks "something like Kawasaki Disease" - but told us not to worry.. that was a very rare illness. She told me not to Google it and freak myself out. She put him on antibiotics and sent him in for a chest Xray to rule out pneumonia. 

This was before smartphones - with my day spent at doctors and caring for my little one, I didn't Google Kawasaki Disease...but when he was admitted to Rady Children's Hospital the next day, I wish I had.

Kawasaki Disease is the NUMBER ONE CAUSE OF ACQUIRED HEART DISEASE IN CHILDREN. And going on 8 years later, doctors and scientists STILL don't know exactly what causes it. 

We were lucky.

At the time, many pediatricians weren't trained to recognize and treat KD, and far too many parents were losing their kids to this disease. Our doctors diagnosed the disease in time for a successful treatment. Thus far Lucas has had no lasting heart damage. But as the research continues to grow and mature along with the little hearts affected by KD in the past, we are learning that things can always change.

That's why Jason and I are standing together to not only raise awareness for the disease, but help raise funds for the continued research of this disease.

BUT WE NEED A LITTLE HELP

Saturday, November 17th is the 4th Annual "To Save a Child's Heart" Kawasaki Disease Foundation Gala.

This is going to be an amazing culinary evening at La Costa Resort in Carlsbad, celebrating all we know and raising money to keep on answering the millions of questions still unanswered. 

At this event, 18 celebrity chefs will cook table side for intimate groups of 8 people. Some of the top chefs from around the country and coming in and donating their time for this cause. I'm proud to be on the committee helping with the gala. I'm happy that I can do anything to give back the community that was there for us when we needed them 8 years ago.

If you are interested in attending the event, you can find more information on the chefs at www.KDFGala.org.

But even if you can't be there - I would still love your help. 

To help raise money at the event, we are looking for donations for the silent auction portion of the evening. 

Anything from gift certificates to restaurants, bottles of wine, work-out memberships or a basket of products would be greatly appreciated. 

I'm going to be collecting items over the next few weeks. If you can help in anyway, please let me know. 

Yes, I'm begging. Because I'm still scarred from the experience and learning all we can about this disease is the only way I can help other parents not have to go through what we went through. 

5 Years

We're celebrating a bit of an anniversary around here.. one that makes me want to hug and squeeze Lucas forever and ever...

I'll let Jason put it words:

http://www.dadcentric.com/2009/12/an_anniversary.html